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Fibromyalgia, Peripheral Neuropathy and the ideal supplements or vitamins to help those who suffer


KirbysMom

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Hello all! After seeing multiple doctors over 3 years, I was finally diagnosed with both Fibromyalgia and Peripheral Neuropathy. It has been nearly 5 more years and I now am completely unable to work. Despite the multiple meds, I am still in terrible pain and have no energy. It is a miracle when I am occasionally able to do housework or grocery shop. Most days I find that I don't have much of an appetite and I know that I'm not getting the vitamins and minerals that may help me feel a little better. I don't want to waste time and money on ones that I don't need or that are not metabolized correctly. Anyone out there that can help me?? Thanks in advance!!

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  • 4 weeks later...

Assuming your diagnosis of fibromyalgia is correct, one of the many symptoms of FM is peripheral (non-diabetic) neuropathy.

The similarity of FM to Chronic Fatigue syndrome is significant however some studies have reported that as much as 50% of people diagnosed with FM do not meet the criteria for such diagnosis.

 

Most medication and nutritional supplementation is prescribed on an individual basis but a general set of nutrients can be recommended.

Some nutrients can reduce some symptoms and some nutrients are recommended to avoid worsening of symptoms over time.

Current research shows that most sufferers of FM do have pathology in numerous metabolic pathways which seems to be as a result of fundamental problems at the genetic level.

That is, at the level of gene transcription and protein synthesis. This results in numerous enzymatic pathways being faulty. The results can be deficiencies in a number of key nutrients.

 

The most used are vitamin B12, B6 and B9 (folate). Research at the University of Newcastle (UK) has found that the majority of people with FM need magnesium supplements to reduce muscle cramps and twitches.

Vitamin D3 supplementation is universally recommended and this also needs vitamin K2 and zinc as co-nutrients. Also recommended is creatine, although some people report that this does nothing for them.

 

Some people have reported significantly reduced symptoms of pain and fatigue, as well as significant gut normalization by taking both amitryptiline and melatonin at night. The typical doses are Amitryp=15 to 25mg

and melatonin which is best taken as the bi-layered tablet: 2mg slow release+3mg fast release.

 

The doses of nutrients is an individual matter but typical are

B12 1mg sublingual

B6 100mg

B9 0.8 mg

magnesium citrate (or other salt but no oxide alone) 400mg-600mg

vitamin D3 5000iu

vitamin K2 1mg

zinc 16 mg

creatine 3 grams

You could also consider CoQ10 (ubiquinone or ubiquinol)

Ubiquinol is more bio-available.

 

Hope this has helped

IanH PhD

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  • 1 month later...

Consider Quinine as available in Tonic Water, either regular or diet. Some MDs will recommend an 8 oz glass at around 6pm then another 8 oz glass at around midnight, along with whatever vitamin and mineral supplements that make you happy. Relief from the tremendous major leg cramps while sleeping is evident.

 

Evident to the point where bedtime is no longer the dreaded nightly event. To the point where sleeping is no longer considered strictly SOLO with a closed bedroom door. Thrashing and screaming. The nightmares are also stopped. Mega Tsunamis and impossible Train Wrecks. Quinine and supplements work.

 

Edited by HB Speelling, sintax, gramoour, punctuiations, etc..

Edited by HB of CJ
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